Chapter 7: Information Sources


Section 3: Specific Disabilities – Information Sources


Subsection: National Disability Organizations

American Association for Physical Activity and Recreation

Email:

MNelson@aahperd.org

The Adapted Physical Activity Council (APAC) of AAPAR is dedicated to enhancing quality of life by promoting creative and active lifestyles through meaningful, inclusive physical activity, recreation and fitness experiences across the lifespan with particular focus on community-based programs.

1900 Association Dr.
Reston , VA 20191-1599

Voice: 

703-476-3431

Fax: 

703-476-9527

American Association of People with Disabilities (AAPD)

The American Association of People with Disabilities (AAPD) is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities. As a national cross-disability rights organization, AAPD advocates for full civil rights for the over 60 million Americans with disabilities by promoting equal opportunity, economic power, independent living, and political participation.

2013 H Street, NW, 5th Floor
Washington , DC 20006

Voice: 

202-521-4316
800-840-8844

American Association on Intellectual and Developmental Disabilities (AAIDD)

American Association on Intellectual and Developmental Disabilities, (formerly AAMR -- American Association on Mental Retardation) is the oldest and largest interdisciplinary organization of professionals and others concerned about intellectual and developmental disabilities.

8403 Colesville Road, Suite 900
Silver Spring , MD 20910

Voice: 

202-387-1968

Fax: 

202-387-2193

American Bar Association (ABA) - Commission on Mental and Physical Disability Law

Email:

cdr@americanbar.org

The Commission works to promote the American Bar Association's commitment to justice and the rule of law for people with mental, physical, and sensory disabilities, and to promote their full and equal participation in the legal profession.

1050 Connecticut Ave. N.W., Suite 400
Washington , DC 20036

Voice: 

202-662-1570

Fax: 

202-442-3439

American Council of the Blind (ACB)

Email:

info@acb.org

The American Council of the Blind's (ACB) mission is to increase the independence, security, equality of opportunity, and quality of life for all blind and visually impaired people.

1703 N Beauregard St, Suite 420
Alexandria , VA 22311

Voice: 

202-467-5081

Toll Free: 

800-424-8666

Fax: 

703-465-5085

American Diabetes Association

Email:

askada@diabetes.org

The moving force behind the work of the American Diabetes Association is a network of more than 565,000 volunteers, a membership of more than 540,000 people with diabetes, their families and caregivers, a professional society of nearly 20,000 health care professionals, as well as more than 400 staff members.

2451 Crystal Drive, Suite 900
Arlington , VA 22202

Toll Free: 

800-342-2383

American Epilepsy Society

The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. Membership in the Society is made up of clinicians and researchers investigating basic and clinical aspects of epilepsy, and other health-care professionals interested in seizure disorders.

135 South LaSalle Street, Suite 2850
Chicago , IL 60603

Voice: 

312-883-3800

Fax: 

312-896-5784

American Foundation for the Blind

Email:

info@aph.org

The mission of the American Foundation for the Blind is to create a world of no limits for people who are blind or visually impaired. They mobilize leaders, advance understanding, and champion impactful policies and practices using research and data.

1401 South Clark Street, Suite 730
Arlington , VA 22202

Voice: 

212-502-7600

Toll Free: 

800-232-5463

American Occupational Therapy Association (AOTA)

The American Occupational Therapy Association (AOTA) is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

4720 Montgomery Ln., Suite 200
Bethesda , MD 20814

Voice: 

301-652-6611

American Orthotic and Prosthetic Association (AOPA)

Email:

info@aopanet.org

The American Orthotic & Prosthetic Association (AOPA) is a national trade association committed to providing high quality, unprecedented business services and products to Orthotic & Prosthetic professionals.

330 John Carlyle St., Ste. 200
Alexandria , VA 22314

Voice: 

571-431-0876

Fax: 

571-431-0899

American Physical Therapy Association (APTA)

The American Physical Therapy Association (APTA) is an individual membership professional organization representing more than 100,000 member physical therapists (PTs), physical therapist assistants (PTAs), and students of physical therapy.

APTA seeks to improve the health and quality of life of individuals in society by advancing physical therapist practice, education, and research, and by increasing the awareness and understanding of physical therapy's role in the nation's health care system.

1111 N. Fairfax St.
Alexandria , VA 22314-1488

Voice: 

703-684-2782

TTY: 

Toll Free: 

800-999-2782

Fax: 

703-684-7343

American Psychological Association (APA)

The American Psychological Association (APA) is a scientific and professional organization that represents psychology in the United States.

750 First St., N.E.
Washington , DC 20002-4242

Voice: 

202-336-5500

Toll Free: 

800-374-2721

American Speech-Language-Hearing Association (ASHA)

The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 204,000 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.

2200 Research Blvd,
Rockville , MD 20850-3289

Voice: 

301-296-5700

TTY: 

301-296-5650

Toll Free: 

800-638-8255 Non-Members
800-498-2071 Members

Fax: 

301-296-8580

American Therapeutic Recreation Association (ATRA)

American Therapeutic Recreation Association (ATRA) is the national membership organization representing the interests and needs of recreational therapists.

11130 Sunrise Valley Drive, Suite 350
Reston , VA 20191

Voice: 

703.234.4140

APSE: The Network on Employment

Email:

info@apse.org

APSE is the only national, non-profit membership organization dedicated to Employment First, a vision that all people with disabilities have a right to competitive employment in an inclusive workforce.

7361 Calhoun Place, Suite 680
Rockville , MD 20855

Voice: 

301-279-0060

Fax: 

301-279-0075

Arthritis Foundation

Email:

help@arthritis.org

The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research that has a comprehensive list of local Arthritis Foundation local chapters and support groups.

1355 Peachtree St NE, 6th Floor
Atlanta , GA 30309

Voice: 

404-872-7100

Association for Education and Rehabilitation of the Blind and Visually Impaired

Email:

aer@aerbvi.org

The Association for Education and Rehabilitation of the Blind and Visually Impaired (AER) is a professional membership organization dedicated exclusively to professionals who provide services to persons with vision loss.

5680 King Centre Drive, Suite 600
Alexandria , VA 22315

Voice: 

703-671-4500

Fax: 

703-671-6391

Association of Tech Act Projects (ATAP)

The Association of Assistive Technology Act Programs (ATAP) is a national, member-based non-profit organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act).

2312 Mount Vernon Ave, 2nd Floor #12
Alexandria , VA 22301

Voice: 

217-522-7985

Association of University Centers on Disabilities (AUCD)

Email:

aucdinfo@aucd.org

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs.

1100 Wayne Ave. Suite 1000
Silver Spring , MD 20910

Voice: 

301-588-8252

Fax: 

301-588-2842

Asthma and Allergy Foundation of America (AAFA)

Email:

media@aafa.org

The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization founded in 1953, is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world.

1235 South Clark Street Suite 305
Arlington , VA 22202

Voice: 

202-974-1223

Toll Free: 

800-727-8462

Autism Society of America (ASA)

The Autism Society of America has been improving the lives of all affected by autism for over 50 years and envisions a world where individuals and families living with autism are able to maximize their quality of life, are treated with the highest level of dignity, and live in a society in which their talents and skills are appreciated and valued. They provide advocacy, education, information and referral, support, and community at national, state and local levels through our strong nationwide network of Affiliates.

The AutismSource database features thousands of resources with listings in all 50 states. ASA continues to add programs and users can recommend resources to be added by following the prompts on the site. Listings include physicians, psychologists, speech, occupational and behavioral therapists, schools, camps, training programs, government agencies, and much more. To access AutismSource, follow this link: http://209.200.89.252/search_site/

4340 East-West Hwy, Suite 350
Bethesda , MD 20814

Toll Free: 

800-328-8476

Bazelon Center for Mental Health Law

The Bazelon Center for Mental Health Law has been a legal advocate for people with mental disabilities for three decades. Their precedent-setting litigation has outlawed institutional abuse and won protections against arbitrary confinement. In the courts and in Congress, their advocacy has opened up public schools, workplaces, housing and other opportunities for people with mental disabilities to participate in community life. Legal advocacy for the rights of persons with mental disabilities; issue information; issue alerts.

1101 15th St., NW, Ste. 1212
Washington , DC 20005

Voice: 

202-467-5730

Brain Injury Association of America

Email:

info@biausa.org

The Brain Injury Association of America (BIAA) is a national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families.

1608 Spring Hill Road, Suite 110
Vienna , VA 22182

Voice: 

703-761-0750

Fax: 

703-761-0755

Center for the Study and Advancement of Disability Policy (CSADP)

Email:

Bobby.Silverstein@ppsv.com

The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.

1875 Eye St., N.W., 12th Floor
Washington , DC 20006

Voice: 

202-466-6550

Children and Adults with Attention Deficit Disorders (CHADD)

Children and Adults with Attention Deficit Disorders (CHADD)is a membership organization, produces the bi-monthly Attention! magazine (for members), and sponsors an annual conference.
Tulsa CHADD: Hardesty Library at 93rd Place & Memorial., Tulsa, OK
http://www.chadd.net/template.cfm?affid=117&p=about

4221 Forbes Blvd, Suite 270
Lanham , MD 20706

Voice: 

301-306-7070

Fax: 

301-306-7090

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Email:

ceasd@ceasd.org

CEASD provides an opportunity for professional educators to work together for the improvement of schools and educational programs for individuals who are deaf or hard of hearing. The organization brings together a rich composite of resources and reaches out to both enhance educations programs and influence educational policy makers.

P.O. Box 116
Washington Grove , MD 20880

Voice: 

202-999-2204 Voice
202-866-6248 VP

Fax: 

Consortium for Citizens with Disabilities

Email:

Info@c-c-d.org

The Consortium for Citizens with Disabilities (CCD) is the largest coalition of national organizations working together to advocate for federal public policy that ensures the self-determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

820 First Street, NE, Ste. 740
Washington , DC 20002

Voice: 

202-567-3516

Fax: 

202-408-9520

Council for Exceptional Children (CEC)

Email:

service@cec.sped.org

The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically under served individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

3100 Clarendon Blvd, Suite 600
Arlington , VA 22201-5332

Voice: 

888-232-7733

Toll Free: 

888-232-7733
866-915-5000 TTY

Council for Learning Disabilities (CLD)

The Council for Learning Disabilities (CLD) is an international organization composed of professionals who represent diverse disciplines, is committed to enhancing the education and quality of life for individuals with learning disabilities across the life span. CLD accomplishes this by promoting and disseminating evidence-based research and practices related to the education of individuals with learning disabilities. In addition, CLD fosters (a) collaboration among professionals; (b) development of leaders in the field; and (c) advocacy for policies that support individuals with learning disabilities at local, state, and national levels.

11184 Antioch Road P.O. Box 405
Overland Park , KS 66210

Voice: 

913-491-1011

Fax: 

913-491-1011

Disability Rights Education and Defense Fund, Inc. (DREDF)

Email:

info@dredf.org

The Disability Rights Education and Defense Fund is a national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities.

3075 Adeline Street, Ste. 210
Berkeley , CA 94703

Voice: 

510-644-2555

TTY: 

510-841-8645

Fax: 

510-841-8645

Easter Seals Metropolitan Chicago

For 100 years, Easterseals has served as an indispensable resource for individuals with disabilities, veterans, seniors and their families. Their 68 affiliates in communities nationwide serve 1.5 million people through high-quality programs including autism services, early intervention, workforce development, adult day care and more.

141 W Jackson Blvd, Suite 1400A
Chicago , IL 60604

Toll Free: 

800-221-6827

Epilepsy Foundation

Email:

ContactUs@efa.org

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

8301 Professional Place West, Suite 230
Landover , MD 20785-2356

Voice: 

301-459-3700

Toll Free: 

800-332-1000 24/7 Epilepsy & Seizures Helpline

Fax: 

301-577-2684

Genetic Alliance, Inc.

Email:

info@geneticalliance.org

Genetic Alliance is a 501 (c)(3) nonprofit organization that engages individuals, families, and communities to transform health.

4301 Connecticut Ave. NW, Ste. 404
Washington , DC 20008-2369

Voice: 

202-966-5557

Fax: 

202-966-8553

Goodwill Industries International

Email:

contactus@goodwill.org

Goodwill Industries International is committed to providing employment, education, and skill-building opportunities to people around the world.

15810 Indianola Dr.
Rockville , MD 20855

Hearing Loss Association of America

The Hearing Loss Association of America exists to open the world of communication for people with hearing loss through information, education, advocacy and support.

7910 Woodmont Ave., Ste. 1200
Bethesda , MD 20814

Voice: 

301-657-2248

Fax: 

301-913-9413

HEATH Resource Center

Email:

AskHEATH@gwu.edu

The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. Since 2000, the HEATH Resource Center has served as a national clearinghouse on postsecondary education for individuals with disabilities, managed by The George Washington University Graduate School of Education and Human Development.

HEATH participates in national conferences, training sessions, and workshops; develops training modules; publishes resource papers, fact sheets, directories, and website information; and fosters a network of professionals in the arena of disability issues.

2134 G St., N.W., Suite 308
Washington , DC 20052-0001

Helen Keller National Center for Deaf-Blind Youths and Adults

Email:

hkncinfo@hknc.org

The Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC) offers intensive and comprehensive rehabilitation training to individuals who are deaf-blind.

HKNC Region 6: South Central
AR, LA, NM, OK, TX
P.O Box 78
East Moline, IL 61244
VP: 309-716-3657
laura.thomas@hknc.org (interim)
https://www.helenkeller.org/hknc/south-central-region

This residential facility provides adaptive skills and vocational instruction to deaf-blind youths and adults. Regional Representatives provide consultation and technical assistance to individuals with deaf-blindness and their families, as well as to educators and adult service agencies. Reps also locate needed programs and resources and handle referrals to Helen Keller National Center.

141 Middle Neck Rd.
Sands Point , NY 11050

Voice: 

516-994-8900

TTY: 

516-570-3246 VP

International Dyslexia Association (IDA)

Email:

info@dyslexiaida.org

The mission of International Dyslexia Association (IDA) is to create a future for all individuals who struggle with dyslexia and other related reading differences so that they may have richer, more robust lives and access to the tools and resources they need.

40 York Rd., 4th Fl.
Baltimore , MD 21204

Voice: 

410-296-0232

Fax: 

410-321-5069

Joseph P. Kennedy, Jr. Foundation

Email:

jpkjrfdn@gmail.com

The mission of the Kennedy Foundation is to provide leadership in the field of intellectual disabilities and service to persons with intellectual disabilities, and their families. Click on website link for more information.

1133 19th St. N.W., 12th Fl.
Washington , DC 20036-3604

Justice For All Email Network

The American Association of People with Disabilities (AAPD) is a convener, connector, and catalyst for change, increasing the political and economic power of people with disabilities.

As a national cross-disability rights organization, AAPD advocates for full civil rights for the over 60 million Americans with disabilities by promoting equal opportunity, economic power, independent living, and political participation.

American Association of People with Disabilities (AAPD)
2013 H Street, NW, 5th Floor
Washington , DC 20006

Voice: 

202-521-4316

Toll Free: 

800-840-8844

Learning Disabilities Association of America (LDA)

Through its Annual International Conference as well as state affiliate conferences and workshops LDA provides a forum for questions on learning disabilities and new technology and approaches for teaching individuals with learning disabilities.

461 Cochran Road, Suite 245
Pittsburgh , PA 15228

Voice: 

412-341-1515

Fax: 

412-344-0224

Lupus Foundation of America, Inc.

Email:

info@lupus.org

The Lupus Foundation of America works to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.

2121 K Street NW, Suite 200
Washington , DC 20037

Voice: 

202-349-1155

Fax: 

202-349-1156

Mental Health America

Mental Health America (MHA) is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and promoting the overall mental health of all Americans.

500 Montgomery Street, Suite 820
Alexandria , VA 22314

Voice: 

703-684-7722

Toll Free: 

800-969-6642

Fax: 

703-684-5968

Muscular Dystrophy Association (MDA)

Email:

resourcecenter@mdausa.org

The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education.

National Office
161 N. Clark, Suite 3550
Chicago , IL 60601

Toll Free: 

800-572-1717

National Alliance on Mental Illness (NAMI)

NAMI provides advocacy, education, support and public awareness so that all individuals and families affected by mental illness can build better lives.

Colonial Place Three
4301 Wilson Blvd., Suite 300
Arlington , VA 22203

Voice: 

703-524-7600

Toll Free: 

800-950-6264 Info Helpline

National AMBUCS, Inc.

Email:

ambucs@ambucs.org

National AMBUCS, Inc. is a nonprofit charitable organization with a diverse membership dedicated to inspiring mobility & independence.

Their mission is to inspire people to conquer challenges related to mobility and independence, through a nationwide network of volunteer chapters, working in partnership with physical, occupational and speech therapists; by providing Amtryke adaptive trykes, scholarships for therapists and many forms of community service

P.O. Box 5127
High Point , NC 27262

Toll Free: 

800-838-1845

National Association of Councils on Developmental Disabilities

Email:

info@nacdd.org

The National Association of Councils on Developmental Disabilities (NACDD) is the national association for the 56 Councils on Developmental Disabilities (DD Councils) across the United States and its territories. The DD Councils receive federal funding to support programs that promote self-determination, integration, and inclusion for all people in the United States with developmental disabilities.

1825 K Street, NW, Suite 600
Washington , DC 20006

Voice: 

202-506-5813

National Association of Private Special Education Centers (NAPSEC)

Email:

napsec@napsec.org

NAPSEC member programs provide educational therapeutic services to both publicly and privately placed individuals that are not able to be successfully educated in the regular education environment. These services also include infants and toddlers served in early intervention programs and postsecondary college experience and adult living programs which serve individuals who have graduated or are over 21.

601 Pennsylvania Avenue, NW, Suite 900 - South Building
Washington , DC 20004

Voice: 

202-434-8225

National Association of Rehabilitation Research and Training Centers (NARRTC)

The ultimate mission of NARRTC is to promote the full inclusion of persons with disabilities in American society through applied research, training, technical assistance, knowledge translation, development and demonstration activities.

National Association of the Deaf

The National Association of the Deaf (NAD), is an organization that is safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications.

Programs and activities include grassroots advocacy and empowerment, captioned media, certification of American Sign Language professionals; certification of sign language interpreters; deafness-related information and publications, legal assistance, policy development and research, public awareness, and youth leadership development.

8630 Fenton St., Ste. 820,
Silver Spring , MD 20910

Voice: 

301-587-1788

TTY: 

301-587-1789

Fax: 

301-587-1791

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