Chapter 7: Information Sources


Section 3: Specific Disabilities – Information Sources


Subsection: National Disability Organizations

American Association for Physical Activity and Recreation

Email:

aapar@aahperd.org

The Adapted Physical Activity Council (APAC) of AAPAR provides a series of innovative "hands on" workshops for professionals serving individuals with disabilities. National experts present half day and full day workshops on adapted sports, inclusion, pre-school, behavior management, dance and assessment.

Adapted Physical Activity Council (APAC) 1900 Association Dr.
Reston , VA 20191

Toll Free: 

800-213-7193, ext. 431

Fax: 

703-476-9527

American Association of People with Disabilities (AAPD)

Email:

aapd@aol.com

A national nonprofit cross-disability member organization, dedicated to ensuring economic self-sufficiency and political empowerment for Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation and enforcement of disability nondiscrimination laws, particularly the Americans with Disabilities Act (ADA) of 1990 and the Rehabilitation Act of 1973.

2013 H Street, NW, 5th Floor
Washington , DC 20006

Voice: 

202-457-0046

TTY: 

202-457-0046

Fax: 

866-536-4461

American Association on Intellectual and Developmental Disabilities (AAIDD)

American Association on Intellectual and Developmental Disabilities (AAIDD) is an interdisciplinary organization of professionals (and others) concerned about mental retardation and related disabilities.

501 3rd Street, NW Suite 200
Washington , DC 20001

Toll Free: 

800-424-3688

Fax: 

202-387-2193

American Bar Association (ABA) - Commission on Mental and Physical Disability Law

The American Bar Association's Commission on Mental and Physical Disability Law established a Mentor Program for law students with disabilities, prospective law students with disabilities and recent law school graduates with disabilities to give members of these groups the opportunity to learn from an experienced attorney.

740 15th St., N.W.
Washington , DC 20005

Voice: 

202-662-1576

Fax: 

202-662-1032

American Council of the Blind (ACB)

National organization of blind individuals, families and other supporters. Provides issue information, advocacy, publications, job listings, Internet radio and web site. ACB has 51 state and regional affiliates and 20 national special interest and professional affiliates. The state/regional groups meet statewide once or twice yearly and many of these organizations also have local chapters. Many of these local chapters meet monthly. The national special interest affiliates meet annually during the ACB national convention and many of these groups have state/metropolitan chapters.

Offers a variety of scholarships for blind and visually impaired students.

2200 Wilson Boulevard, Suite 650,
Arlington , VA 22201

Voice: 

202-467-5081

Toll Free: 

800-424-8666

Fax: 

202-467-5085

American Diabetes Association

Email:

AskADA@diabetes.org

For diabetes-related questions or to request a diabetes information packet, call 800-342-2383 or email us at AskADA@diabetes.org. In order to better serve you, please provide your name and address along with your request.

ATTN: National Call Center 1701 N. Beauregard St.
Alexandria , VA 22311

Toll Free: 

800-342-2383

American Epilepsy Society

The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. Membership in the Society is made up of clinicians and researchers investigating basic and clinical aspects of epilepsy, and other health-care professionals interested in seizure disorders.

342 N. Main St.
West Hartford , CT 06117

Voice: 

860-586-7505

Fax: 

860-586-7550

American Foundation for the Blind

Email:

afbinfo@afb.org

A national nonprofit organization serving blind individuals, organizations that serve them and the general public. Areas of program activity include information collection and dissemination (including research and publications), issue and policy research and analysis, education of the public and policymakers on issues of importance to the blind, and production of talking books and other accessible materials. Legislative and issue updates provided in Words from Washington on AFB web site or by email. Catalog of publications available online.

Offers scholarships for students who are blind or visually impaired.

2 Penn Plaza, Ste. 1102
New York , NY 10121

Voice: 

212-502-7600

TTY: 

212-502-7662

Toll Free: 

800-232-5463

Fax: 

888-545-8331

American Occupational Therapy Association (AOTA)

The American Occupational Therapy Association (AOTA) is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

4720 Montgomery Ln.
Bethesda , MD 20824

Voice: 

301-652-2682

TTY: 

800-377-8555

Fax: 

301-652-7711

American Orthotic and Prosthetic Association (AOPA)

Email:

info@aopanet.org

The American Orthotic & Prosthetic Association (AOPA) is a national trade association committed to providing high quality, unprecedented business services and products to Orthotic & Prosthetic professionals.

330 John Carlyle St., Ste. 200
Alexandria , VA 22314

Voice: 

571-431-0876

Fax: 

571-431-0899

American Physical Therapy Association (APTA)

The American Physical Therapy Association (APTA) is a national professional organization representing more than 66,000 members. Its goal is to foster advancements in physical therapy practice, research, and education.

1111 N. Fairfax St.
Alexandria , VA 22314

Voice: 

703-684-2782

TTY: 

703-683-6748

Toll Free: 

800-999-2782

Fax: 

703-684-7343

American Psychological Association (APA)

The American Psychological Association (APA) is a scientific and professional organization that represents psychology in the United States.

750 First St., N.E.
Washington , DC 20002

Voice: 

202-336-5500

TTY: 

202-336-6123

Toll Free: 

800-374-2721

Fax: 

202-336-6036

American Speech-Language-Hearing Association (ASHA)

Email:

foundation@asha.org

ASHA is the professional, scientific, and credentialing association for audiologists, speech-language pathologists, and speech, language, and hearing scientists.

2200 Research Blvd,
Rockville , MD 20850

Voice: 

301-296-8700

Toll Free: 

800-638-8255 Non-Members
800-498-2071 Members

Fax: 

301-296-8580

American Therapeutic Recreation Association (ATRA)

Email:

atracommunications@atra-tr.org

The American Therapeutic Recreation Association (ATRA) is a national membership organization representing the interests and need of recreational therapists. Recreational therapists are health care providers using recreational therapy interventions for improved functioning of individuals with illness or disabling conditions.

1414 Prince Street, Suite 204
Alexandria , VA 22314

Voice: 

703-683-9420

Fax: 

703-683-9431

APSE: The Network on Employment

Email:

apse@apse.org

APSE: The Network on Employment is a membership organization formed in 1988 as the Association for Persons in Supported Employment to improve and expand integrated employment opportunities, services, and outcomes for persons experiencing disabilities.

416 Hungerford Dr., Ste. 418
Rockville , MD 20850

Voice: 

301-279-0060

Fax: 

301-279-0075

Arthritis Foundation

Email:

help@arthritis.org

The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research that has a comprehensive list of local Arthritis Foundation local chapters and support groups.

P.O. Box 7669
Atlanta , GA 30357

Toll Free: 

800-283-7800

Association for Education and Rehabilitation of the Blind and Visually Impaired

An international professional association of individuals working in the fields of education and rehabilitation of the blind and visually impaired. Promotes professional excellence through support of those who provide services to people with visual impairments. Provides advocacy for specialized, quality services for blind children and adults. Administers professional certification program. Provides training and professional development opportunities. Publications and resources available.

William and Dorothy Ferrell Scholarship: The Ferrell Scholarship is awarded to two selected applicants who are legally blind and are studying for a career in the field of services to persons who are blind or visually impaired.

1703 N. Beauregard St., Ste. 440
Alexandria , VA 22311

Voice: 

703-671-4500

Toll Free: 

877-492-2708

Fax: 

703-671-6391

Association of Tech Act Projects (ATAP)

The Association of Assistive Technology Act Programs (ATAP) is a national, member-based organization, comprised of state Assistive Technology Act Programs funded under the Assistive Technology Act (AT Act).

1 Old State Capitol Plaza, Suite 100
Springfield , IL 62701

Association of University Centers on Disabilities (AUCD)

Email:

aucdinfo@aucd.org

Through its members, Association of University Centers on Disabilities (AUCD) is a resource for local, state, national, and international agencies, organizations, and policy makers concerned about people living with developmental and other disabilities and their families.

1100 Wayne Ave. Suite 1000
Silver Spring , MD 20910

Voice: 

301-588-8252

Fax: 

301-588-2842

Asthma and Allergy Foundation of America (AAFA)

Email:

Info@aafa.org

The Asthma and Allergy Foundation of America (AAFA), a not-for-profit organization, provides practical information, community based services and support through a national network of chapters and support groups. AAFA develops health education, organizes state and national advocacy efforts and funds research to find better treatments and cures.

1233 20th St. N.W., Ste. 402
Washington , DC 20036

Voice: 

202-466-7643

Toll Free: 

800-727-8462

Fax: 

202-466-8940

Autism Society of America (ASA)

ASA chapters are your best source of information and support. Most chapters are volunteer-led by parents, care providers, and other professionals. ASA has chapters in nearly every state reaching out to individuals with autism and their families with information, support, and encouragement. Autism Society of Central Oklahoma (ASOCO) is the local chapter for Oklahoma.

The AutismSource database features thousands of resources with listings in all 50 states. ASA continues to add programs and users can recommend resources to be added by following the prompts on the site. Listings include physicians, psychologists, speech, occupational and behavioral therapists, schools, camps, training programs, government agencies, and much more. To access AutismSource, follow this link: http://209.200.89.252/search_site/

4340 East-West Hwy, Suite 350
Bethesda , MD 20814

Voice: 

301-657-0881

Toll Free: 

800-328-8476

Fax: 

301-657-0869

Bazelon Center for Mental Health Law

Email:

webmaster@bazelon.org

The Bazelon Center for Mental Health Law has been a legal advocate for people with mental disabilities for three decades. Their precedent-setting litigation has outlawed institutional abuse and won protections against arbitrary confinement. In the courts and in Congress, their advocacy has opened up public schools, workplaces, housing and other opportunities for people with mental disabilities to participate in community life. Legal advocacy for the rights of persons with mental disabilities; issue information; issue alerts.

1101 15th St., NW, Ste. 1212
Washington , DC 20005

Voice: 

202-467-5730

Fax: 

202-223-0409

Brain Injury Association of America

Email:

braininjuryinfo@biausa.org

The Brain Injury Association of America (BIAA) is a national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families.

1608 Spring Hill Road, Suite 110
Vienna , VA 22182

Voice: 

703-761-0750

Toll Free: 

800-444-6443

Fax: 

703-761-0755

Center for the Study and Advancement of Disability Policy (CSADP)

Email:

Bobby.Silverstein@ppsv.com

The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.

1875 Eye St., N.W., 12th Floor
Washington , DC 20006

Voice: 

202-466-6550

Children and Adults with Attention Deficit Disorders (CHADD)

Children and Adults with Attention Deficit Disorders (CHADD)is a membership organization, produces the bi-monthly Attention! magazine (for members), and sponsors an annual conference.
Central Oklahoma CHADD - 405-722-1233 Voice
Shawnee Area Satellite of CHADD - 405-878-0161 Voice
Northeastern Oklahoma Satellite of CHADD - 918-523-5197 Voice

8181 Professional Pl., Ste. 150
Landover , MD 20785

Voice: 

301-306-7070

Toll Free: 

800-233-4050

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD)

Email:

NationalOffice@ceasd.org

Conference of Educational Administrators of Schools and Programs for the Deaf (CEASD) provides an opportunity for professional educators to work together for the improvement of schools and educational programs for individuals who are deaf or hard of hearing. The organization brings together a rich composite of resources and reaches out to both enhance educational programs and influence educational policy makers.

P.O. Box 1778
St. Augustine , FL 32085

Voice: 

904-810-5200

Fax: 

904-810-5525

Consortium for Citizens with Disabilities

Email:

Info@c-c-d.org

The Consortium for Citizens with Disabilities is a coalition of national consumer, advocacy, provider and professional organizations that has advocated on behalf of people of all ages with physical and mental disabilities and their families.

1660 L St., NW, Ste. 700
Washington , DC 20036

Voice: 

202-783-2229

Fax: 

202-783-8250

Council for Exceptional Children (CEC)

Email:

service@cec.sped.org

The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically under served individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

2900 Crystal Drive, Ste. 1000
Arlington , TX 22202

Voice: 

888-232-7733

Toll Free: 

888-232-7733
866-915-5000 TTY

Council for Learning Disabilities (CLD)

Email:

lnease@cldinternational.org

The Council for Learning Disabilities (CLD) is an international organization concerned about issues related to students with learning disabilities.

P.O. Box 405
Overland Park , KS 66210

Voice: 

913-491-1011

Fax: 

913-491-1012

Disability Rights Education and Defense Fund, Inc. (DREDF)

Email:

info@dredf.org

The Disability Rights Education and Defense Fund is a national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities.

3075 Adeline Street, Ste. 210
Berkeley , CA 94703

Voice: 

510-644-2555

TTY: 

510-644-2555

Toll Free: 

800-348-4232

Fax: 

510-841-8645

Easter Seals Metropolitan Chicago

Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easter Seals offers a variety of services to help people with disabilities address life's challenges and achieve personal goals.

2335 S. Wacker Dr., Ste. 2400
Chicago , IL 60606

Voice: 

312-726-6200

Toll Free: 

800-221-6827

Fax: 

312-726-1494

Epilepsy Foundation

The Epilepsy Foundation works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services.

Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It's also called a seizure disorder. A seizure is caused by a brief, strong surge of electrical activity involving part or all of the brain. When a person has two or more seizures without a clear cause (e.g., alcohol withdrawal), it's considered to be epilepsy.

They have an on-line resource about epilepsy and how to live with it.

8301 Professional Pl., E.
Landover , MD 20785

Toll Free: 

800-332-1000

Genetic Alliance, Inc.

Email:

info@geneticalliance.org

Genetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1,000 conditions. The organization works to transform leadership in the genetics community and to build activity and influence in advocacy organizations and to educate policymakers by expressing the opinions and stories of individuals and families affected by genetic disorders or conditions.

4301 Connecticut Ave. NW, Ste. 404
Washington , DC 20008

Voice: 

202-966-5557

Fax: 

202-966-8553

Goodwill Industries International

Email:

contactus@goodwill.org

Goodwill Industries International is the membership organization comprised of all locally-based Goodwill Industries organizations.

15810 Indianola Dr.
Rockville , MD 20855

Toll Free: 

800-741-0186

Hearing Loss Association of America

The Hearing Loss Association of America exists to open the world of communication for people with hearing loss through information, education, advocacy and support.

7910 Woodmont Ave., Ste. 1200
Bethesda , MD 20814

Voice: 

301-657-2248

Fax: 

301-913-9413

HEATH Resource Center

Email:

AskHEATH@gwu.edu

A national clearinghouse on post secondary education for individuals with disabilities.The HEATH Resource Center is an online clearinghouse on postsecondary education for individuals with disabilities. The clearinghouse serves as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at American campuses, career-technical schools, and other postsecondary training entities.

2134 G St., N.W.
Washington , DC 20052

Voice: 

202-973-0904

Fax: 

202-994-3365

Helen Keller National Center for Deaf-Blind Youths and Adults

Email:

hkncinfo@hknc.org

The Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC) offers intensive and comprehensive rehabilitation training to individuals who are deaf-blind.

Regional Representative: C. C. Davis
4230 LBJ Freeway, Suite 340, LB 31
Dallas, TX 75244-5998
972-490-9677 Voice/TTY
972-490-6042 Fax
Email: ccfutbol@aol.com

This residential facility provides adaptive skills and vocational instruction to deaf-blind youths and adults. Regional Representatives provide consultation and technical assistance to individuals with deaf-blindness and their families, as well as to educators and adult service agencies. Reps also locate needed programs and resources and handle referrals to Helen Keller National Center.

141 Middle Neck Rd.
Sands Point , NY 11050

Voice: 

516-994-8900

TTY: 

516-994-8637

Fax: 

516-994-7302

Inter-National Association of Business, Industry, and Rehabilitation (I-NABIR)

I-NABIR is the Inter-National Association of Business, Industry, and Rehabilitation. It is a private, nonprofit organization. I-NABIR was formed in 1985 by a group of organizations which had Projects With Industry. These organizations felt it was important to have a forum to discuss issues of mutual concern and to promote the employment of persons with disabilities through cooperative arrangements between business, rehabilitation, and organized labor.

P.O. Box 15242
Washington , DC 20003

Voice: 

202-543-6353

International Dyslexia Association (IDA)

The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. IDA is the oldest learning disabilities organization in the nation -- founded in 1949 in memory of Dr. Samuel T. Orton, a distinguished neurologist. They provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge.

40 York Rd., 4th Fl.
Baltimore , MD 21204

Voice: 

410-296-0232

Toll Free: 

800-ABC-D123 Voice Message
Requests for Information

Fax: 

410-321-5069

International Police Relations Council for the Deaf

Email:

iprcfd@juno.com

A Tulsa-based international organization which helps the deaf community work effectively with law enforcement agencies to improve police relations with deaf citizens. Also intervenes at disaster sites to locate affected deaf individuals and help them secure disaster relief services. Works with Red Cross and other disaster relief organizations.

931 S. Waco
Tulsa , OK 74132

Voice: 

918-446-4403

Joseph P. Kennedy, Jr. Foundation

Email:

info@jpkf.org

The mission of the Kennedy Foundation is to provide leadership in the field of intellectual disabilities and service to persons with intellectual disabilities, and their families.

1133 19th St. N.W., 12th Fl.
Washington , DC 20036

Voice: 

202-393-1250

Fax: 

202-824-0351

Justice For All Email Network

Justice For All and our JFA E-mail Network were formed to defend and advance disability rights and programs in Congress. One JFA goal is to work with national and state organizations of people with disabilities to get the word from Washington D.C. out to the grassroots.

American Association of People with Disabilities (AAPD)
2013 H Street, NW, 5th Floor
Washington , DC 20006

Voice: 

202-457-0046

TTY: 

202-457-0046

Toll Free: 

800-840-8844

Fax: 

866-536-4461

Learning Disabilities Association of America (LDA)

Through its Annual International Conference as well as state affiliate conferences and workshops LDA provides a forum for questions on learning disabilities and new technology and approaches for teaching individuals with learning disabilities.

4156 Library Rd.
Pittsburgh , PA 15234

Voice: 

412-341-1515

Fax: 

412-344-0224

Lupus Foundation of America, Inc.

National informational resource. Lupus is an autoimmune disease that can affect various parts of the body, including the skin, joints, heart, lungs, blood, kidneys and brain. Normally the body's immune system makes proteins called antibodies, to protect the body against viruses, bacteria, and other foreign materials. These foreign materials are called antigens.

In an autoimmune disorder like lupus, the immune system cannot tell the difference between foreign substances and its own cells and tissues. The immune system then makes antibodies directed against itself. These antibodies -- called "auto-antibodies" (auto means 'self') -- cause inflammation, pain and damage in various parts of the body.

2000 L St., N.W., Ste. 710
Washington , DC 20036

Voice: 

202-349-1155

Toll Free: 

800-558-0121 800-558-0231 Spanish

Fax: 

202-349-1156

Mental Health America

Mental Health America (formerly known as the National Mental Health Association) is dedicated to helping ALL people live mentally healthier lives.

2000 N. Beauregard St., 6th Fl.
Alexandria , VA 22311

Voice: 

703-684-7722

TTY: 

800-433-5959

Toll Free: 

800-969-6642

Fax: 

703-684-5968

Muscular Dystrophy Association (MDA)

Email:

mda@mdausa.org

The Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education.

3300 E. Sunrise Dr.
Tucson , AZ 85718

Toll Free: 

800-572-1717

National Alliance on Mental Illness (NAMI)

A resource for up-to-date information or support on mental illness.

Colonial Place Three
2107 Wilson Blvd., Ste. 300
Arlington , VA 22201

Voice: 

703-524-7600

TTY: 

703-516-7227

Toll Free: 

800-950-6264 Info Helpline

Fax: 

703-524-9094

National AMBUCS, Inc.

Email:

ambucs@ambucs.org

National AMBUCS, Inc., is a 501(c)3 organization dedicated to creating mobility and independence for people with disabilities.

National AMBUCS, Inc. awards scholarships to therapy students in their junior/senior year in a bachelor's degree program, or a graduate program leading to a master's or doctoral degree. Awards range from $500 to $1,500 annually. There is one two-year award in the amount of $6,000. Students must be accepted in an accredited program by the appropriate health therapy profession authority in physical therapy, occupational therapy, speech language pathology, and hearing audiology. Assistant programs are not eligible. Awards are based on financial need, US citizenship, commitment to local community, demonstrated academic accomplishment, character for compassion and integrity, and career objectives.

P.O. Box 5127
High Point , NC 27262

Toll Free: 

800-838-1845

Fax: 

336-852-6830

National Association of Councils on Developmental Disabilities

Email:

info@nacdd.org

The new organization that was formed as a result of the merger of NADDC (National Association of Developmental Disabilities) and CDDC (Consortium of Developmental Disabilities Councils). This is a national membership organization of state Developmental Disabilities Councils.

1825 K Street, NW, Suite 600
Washington , DC 20006

Voice: 

202-506-5813

Fax: 

202-506-5846

National Association of Private Special Education Centers (NAPSEC)

Email:

napsec@aol.com

NAPSEC programs provide special education services for preschool, elementary, and secondary aged children and adults with mild to severe disabilities in over 60 different disability categories, who need individualized education programs that address their unique needs.

601 Pennsylvania Avenue, NW,
Suite 900 - South Building
Washington , DC 20004

Voice: 

202-434-8225

Fax: 

202-434-8224

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