Chapter 7: Information Sources


Section 3: Specific Disabilities – Information Sources


Subsection: Down Syndrome

Association for Children with Down Syndrome (ACDS)

ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.

4 Fern Pl.
Plainview , NY 11803

Voice: 

516-933-4700

Fax: 

516-933-9524

Down Syndrome Association of Central Oklahoma

DSACO provides new parents with packets that include parent contacts, current handouts on Down syndrome, and inspirational materials. It is very important that new families have a support system and are able to talk with other parents.

DSACO offers regular meetings to provide education and support for parents and families of children with Down syndrome. The meetings also offer an opportunity for parents to meet other families. They are informal gatherings that allow individuals and families an opportunity to share experiences while creating new friendships.

720 W. Wilshire, Ste. 112
Oklahoma City , OK 73116

Voice: 

405-463-5641

Down Syndrome Association of Tulsa

Email:

ziriax@tulsacoxmail.com

The Down Syndrome Association of Tulsa (DSAT) is a non-profit organization that exists to enhance the lives of individuals with Down syndrome, their families and caregivers. This is accomplished by providing support, encouragement, current information, education, opportunities for socialization and by promoting community recognition of the inherent dignity of all people with developmental disabilities.

Check their website for support meeting dates or call for more information.

P.O. Box 54877
Tulsa , OK 74155

Voice: 

918-496-1873

Michael Fund / International Foundation for Genetic Research

The Michael Fund works to raise sufficient funds through direct contributions to support an international pro-life genetic research program aimed at finding treatments for chromosomal disorders including Trisomy 21, the most common and non-inherited form of Down syndrome. They advocate and encourage efforts to improve the care, treatment, education, evaluation and habituation of children with Down syndrome and related chromosomal anomalies which result in mental retardation, to the benefit of themselves, their families, and communities. They serve as a defender of the rights of physically and mentally handicapped persons -- born and pre-born -- most especially the right-to-life upon which all other rights are predicated.

4371 Northern Pike
Pittsburgh , PA 15146

Voice: 

412-374-0111

National Association for Down Syndrome (NADS)

Email:

info@nads.org

Their mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. They offer information, support, and advocacy.

The direct support they provide to families through the Parent Support Program, Mentoring Program, the Work Experience Program, and other individualized services is limited to the local area but they do have many other services that are available to a wider community, including conferences, products and publications, website and online discussion forum, and information about Down syndrome.

P.O. Box 206
Wilmette , IL 60091

Voice: 

630-325-9112

National Down Syndrome Congress

Email:

info@ndsccenter.org

The NDSC works to empower its members and all people with Down syndrome by creating a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome. The NDSC operates the NDSC Center which serves as a clearinghouse for information on Down syndrome. The Center provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Annual convention provides both plenary and workshop sessions detailing state-of-the-art services and how to access these services.

30 Mansell Sourt, Suite 108
Roswell , GA 30076

Voice: 

770-604-9500

Toll Free: 

800-232-6372

Fax: 

770-604-9898

National Down Syndrome Society

Email:

info@ndss.org

The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

The direct support they provide to families through the Parent Support Program, Mentoring Program, the Work Experience Program, and other individualized services is limited to the local area but they do have many other services that are available to a wider community, including conferences, products and publications, website and online discussion forum, and information about Down syndrome.

666 Broadway, 8th Floor
New York , NY 10012

Voice: 

225-219-2225

Toll Free: 

800-221-4602

Fax: 

212-979-2873